Lived experiences of mothers with children with Spinabifida at Kamuzu central hospital
Birth defects are a global problem, neura4 tube defect (NTD's) is the second commonest serious birth defect of genetic or partially genetic globally and around 50% of neural tube defects are Spinabifida. Spinabifida refers to the midline defects involving the failure of the osseous (bony) spine...
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| Format: | Other |
| Language: | English |
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Kamuzu University of Health Sciences
2022
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| Online Access: | http://nkhokwe.kuhes.ac.mw/handle/20.500.12845/376 |
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Add Tag | Summary: | Birth defects are a global problem, neura4 tube defect (NTD's) is the second commonest serious birth defect of genetic or partially genetic globally and around 50% of neural tube defects are Spinabifida. Spinabifida refers to the midline defects involving the failure of the osseous (bony) spine to close, the most common defect of the central nervous system.
However, the burden of caring for children with Spinabifida usually rest on mothers as well as the whole family. The study aimed to explore about the "lived experiences of mothers with children with Spinabifida". The study was descriptive in nature and qualitative research method was used. The general systems theory was used to guide this research. A sample size of 10 mothers with children with Spinabifida admitted at Paediatric department at Kamuzu Central Hospital was used. The subjects were selected through purposeful sampling, data collected was analysed manually and interpreted and illustrated using graphs, tables and diagram. The results have shown that in general all the mothers with children with Spinabifida expressed knowledge deficit on the condition and emotional reactions such as shock, depression, anxiety, worried and disappointment. The results have further revealed that having a child with Spinabifida has an impact on the physical, psychological, spiritual and social well being. Stress was a major problem experienced by all the mothers with children with Spinabfida. The results also reveal that there is delay in treatment at the hospital which makes mothers of children with Spinabifida to observe no improvement 1 when admitted. The results of the study have also shown that the majority of the mothers lacked coping mechanism to the problems faced. The results may be used by health workers to sensitize the public on Spinabifida. Policy makers may utilize the findings in making policies regarding prevention of Spinabifida. The patients will also benefit from the results of this study in a way that they will have knowledge on the disease condition, how .to prevent it and their perception will change. |
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